A NEW tool for people with epilepsy has been rolled out in WA.
The MyEpilepsyKey, launched at the Harry Perkins Institute of Medical Research on Friday, is a USB linking to information that Epilepsy Action Australia chief executive Carol Ireland said could be key to improving the lives of 26,000 Western Australians with the condition.
“Our goal is for every person living with epilepsy in WA to have a key,” she said.
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READ NOW“It’s not widely known but people living with epilepsy face a multitude of challenges that prevent them from living optimal lives.
“It can be a lonely and isolating condition leading to anxiety or depression, it can consume families mentally and financially, and it can impact dramatically on children’s learning.
“Then there is social stigma and exclusion that still occurs.”
Inspired by cricket personality Tony Greig’s mission to give people with epilepsy an opportunity to live a fulfilling life, the USB is fashioned into a key.
The gesture is a symbol of the former England captain and commentator’s work using keys in his pitch reports.
Greig, who lived with epilepsy from the age of 12, spent almost 20 years on the Epilepsy Action Australia board, helping generate money and awareness.
The keys are available at Friendlies Pharmacies across the state.
Lotterywest grants and community development general manager Jacquie Thomson said her organisation was proud to contribute $100,000 to the project.
How the MyEpilepsyKey works
The MyEpilepsyKey gives access to numerous programs, tools and documents to assist and educate those living with epilepsy.
Included is an electronic seizure diary and a tool to develop a personal seizure management plan.
There are online modules to cater for people of different ages, and information for parents of children with epilepsy.
The information is not stored on the USB, but is linked to a portal and updated as required.
To pick up a MyEpilepsyKey, visit a Friendlies Pharmacy or call Epilepsy Action Australia on 1300 37 45 37.
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