ON Saturday, Cannington’s Steven Knezevich took on the gruelling Dwellingup 100 as part of Muscular Dystrophy (MD) WA’s (MDWA) Ride For Someone Who Can’t campaign.
The intrepid Mr Knezevich joined his friends Steve Hughes and Jodie Hatherly whose son Charlie Hughes (5) was born with MD.
MDWA has supported the family since Charlie was 18 months old and the little boy’s parents wanted to |do something to show their appreciation.
In 2012, Team Charlie was born out of their support and this year a team of 11, including Mr Knezevich, decided to take on the Act-Belong-Commit Dwellingup 100 aiming to raise $20,000.
It has been said that every kilometre on a mountain bike trail is at least equivalent to two on the road and Mr Knezevich said when his legs started to cramp he drew inspiration from Charlie to keep going.
It was Mr Knezevich’s third ride and he said he participated to draw attention to the good work of MDWA.
“It’s a great cause, 100km on a bike is the least I can do. Hopefully good people doing good things like ride in the Dwellingup 100 (will) make people aware of (MD),” he said.
Muscular dystrophy has robbed Charlie of the ability to walk but certainly has not dampened his spirits and heart-warming smile.
Charlie requires around the clock assistance for everything he does, even for simple tasks like picking up a toy. But he gets around at great speeds with his electric wheelchair.
Charlie attends many MDWA functions as Junior Ambassador; he is even known to chase event participants for a donation as he shakes a tin.
Since 2010, more than $500,000 has been raised through the Ride for Someone Who Can’t campaign.
This year, the MDWA team is aiming to raise $100,000 to enrich the lives of West Australians living with muscular dystrophy, a genetic neuromuscular condition, which affects more than 20,000 Australians and has no cure.
With more than 70 types of muscular |dystrophy identified, the severity and deterioration of muscle strength and function varies, making the task of treating the condition even more difficult.
MDWA believes no one should be |defined by their condition and are |passionate about seeing the muscular dystrophy community as people first and enabling them to do the things they strive to achieve.
To make a donation to Muscular Dystrophy Western Australia visit: https://everydayhero.com.au/event/ ridefswc2016