Mrs Hulm and her father Neil Poultney, who was diagnosed with the disease last year, will take part in Motor Neurone Disease Association of WA’s Walk to D’Feet fundraiser on Sunday.
Motor neurone disease is a terminal neurological condition, with no known cause or cure, that robs patients of their ability to speak, move, eat and, ultimately, breathe.
Mrs Hulm said her mother had become the full-time carer of Mr Poultney, who retired from work after his diagnosis.
‘Dad handed in his driver’s licence recently, he is losing his speech and soon he will be confined to a wheelchair,’ she said.
‘For someone that’s been so strong and has been a workaholic all his life, it’s frustrating for him to be increasingly dependent on other people for almost all parts of his daily life.’
Mrs Hulm, and her fundraising team Poult’s Power, hopes to raise more than $2000 from the 6km walk around the Swan River in Burswood.
‘When we tell people that dad has motor neurone disease, most people have no idea what it is and what it entails,’ she said.
‘It is not something that is curable, it is a death sentence and it is a cruel disease to watch your loved ones fade away before your eyes. There are no happy stories and no happy outcomes.’
The fundraiser will be held at Burswood Park, Great Eastern Highway in Burswood. It starts at 9am and for more information visit www.mndawa.asn.au