TEN-year-old Bedford resident Indianna Lederer was told she would never be able to skip or play sports like most children her age.
The Inglewood Primary School student has Russell Silver Syndrome, a rare disease that significantly reduces growth for her age and requires daily injections .
“Every night I have needles in my legs and it makes me grow; I can do it by myself,” Indianna said.
“I’m smaller than the other kids.”
Mother Denise Coppin said it took a long time to figure out what was wrong with her daughter, who has had to endure the injections since the age of four.
“She doesn’t put on weight and she’ll never grow without the growth hormones,” she said.
“She (also) has cyclic vomiting syndrome, which I used to call ragdoll days.
“She was so little and she’d lose all the weight, we’d have to be vigilant, it can be quite dangerous.”
These days, Indianna plays netball and can write at school without the aid of a special computer, which she used to use because of being fatigued after writing for long periods.
Because of the daily injections, Indianna cannot go on school camps, but late last year Maylands Lions Club helped pay for a family holiday to Bali.
It was a break from meditation and needles for the family, “a treat” said Ms Coppin.
“It was really fun,” said Indianna.
The 10-year-old received the Lions Children of Courage award in 2013.