Children of deafblind parents wanted for ECU Joondalup research study

A DISABILITY service provider working with ECU’s school exercise and health sciences is calling for participants to take part in a research study.

Senses Australia deafblind consultant and senior social worker Karen Wickham said the study would help them better understand the experiences and impacts of having a parent with dual sensory loss.

She said they would like to hear from anyone over 18 who is the child of a parent with Usher syndrome or dual sensory loss for a 60 to 90-minute interview.

“Being the child of a parent or parents living with Usher syndrome or dual sensory loss presents some unique challenges and opportunities,” she said.

“Through this research, we hope to identify particular themes and issues that are commonly faced by children of parents with dual sensory loss, with a view to comparing and sharing experiences and helping to raise awareness about this unique journey.”

The research will also be used to provide support to families, guidelines about how to develop strengths in these families as well as advocacy for more relevant support services for those in the community who are deafblind.

For more about the study, visit deafblindinformation. org.au/news, call 0424 900 788 or email karen.wickham@ senses.org.au.