Struggling mums jump at disability services

Heather McGlasson with Jemma (11) and Shane (6) and Corey (8) and Kylie Welsh.
Heather McGlasson with Jemma (11) and Shane (6) and Corey (8) and Kylie Welsh.

His mum Kylie, like most mothers, hopes that one day he will have a job and contribute to society in a meaningful way.

Corey would also be one of the direct beneficiaries of the Federal Government’s National Disability Insurance Scheme ” now renamed DisabilityCare.

After a ‘dodgy’ labour, Corey’s mother watched him grow and knew something was not right.

‘He was stiff, not sitting up, wasn’t eating and dribbling a lot,’ Kylie said.

‘Corey was diagnosed at nine months with spastic quadriplegia cerebral palsy.

‘When you are first told it’s a bit blurry and you don’t understand the full impact of the diagnosis.’

Corey now needs care 24/7. He uses a $15,000 wheelchair and is fed through a tube in his stomach. One of Kylie’s worries is what will happen to Corey in the future when she is no longer able to care for him.

Bronwyn Lines’ daughter Lauren (11) has no muscle tone and needs assistance to move, breath at night and even cough.

She has nemaline myopathy. Off the top of her head, Bronwyn estimates that the equipment Lauren needs would be worth more than $100,000.

This doesn’t include the monthly bill for incontinence products or the electricity required to power Lauren’s breathing machine or batteries.

‘It’s an unfair system. I had a breakdown three years ago and DCP got involved, it was then I got assistance,’ Bronwyn said.

‘But I had to get to breaking point. It was the worst time of my life.’

Jemma McGlasson has a beautiful smile, she was born full term but was underdeveloped.

She started having seizures from birth and received a diagnosis of epilepsy with a global delay.

‘She needs full-time care and she wears nappies,’ her mother Heather said.

‘I worry about Jemma’s future and I don’t know what she is going to be like.’

Heather’s son Shane has cerebral palsy. He receives botox and physical therapy to ease his symptoms.

The women have formed an informal support group and all agree that an official funding stream would give them peace of mind. They all hope that DisabilityCare will give their children more support and opportunities to live their lives like everyone else.