Apps help smiling Allara communicate

Allara May (12)
Allara May (12)

That infectious smile was out in full force last week when she joined dozens of others to celebrate the inaugural International Angelman Syndrome Day with a trip to Maylands Waterland.

‘It was an opportunity to get all the families together for a picnic to celebrate the first IAD,’ her mum Leticia Grant, of Applecross, said.

In WA, about 84 people are living with the syndrome.

It is a genetic condition affecting the 15th chromosome, it’s not inherited but rather a random occurrence at the time of conception.

Ms Grant is the director of Angelman’s Syndrome Association of WA.

She said the aim of the association and the international day was to support, inform, educate, network and advocate families with a child with Angelman syndrome.

‘We hope the day will help to raise awareness so we can find and support the many not yet diagnosed with AD.’

Ms Grant said the ever-improving technology was helping Allara, who has been unable to speak, communicate.

‘She is learning to use the Ipad, and a ‘talking’ app, which has been life changing for her to be able to communicate.’

The day has just passed but already Ms Grant is planning the next fundraising event, which will be held in East Fremantle in November.