Seven-year-old Sarah Boulton was diagnosed with the insulin deficiency five years ago.
Since then, the Boulton family have raised more than $40,000 for the Juvenile Diabetes Research Foundation which is dedicated to finding a cure for the disease.
Sarah’s mother Tammy said it was her eldest daughter Olivia (10) who first set the family on its fundraising path.
“When Sarah was first diagnosed, Olivia was only five and we were trying to explain to her what was wrong with her sister,” Mrs Boulton said.
“When we told her that scientists were still trying to find a cure she immediately decided to start collecting money to help them.”
What started as lollies for sale through the Boulton’s Como Podiatry business grew into a series of fundraising events, including a quiz night that raised $12,000 and Mrs Boulton shaving off her hair in 2013 for another $11,000.
Mrs Boulton said that witnessing her daughter’s bravery in the face of her disease motivated her to keep going.
“Sarah has her daily finger prick to test blood glucose levels up to 10 times a day, including throughout the night so her sleep is always broken,” she said.
“She gets down sometimes but I always say to her at least you can still do everything other kids do: ride a bike, swim, dance.
“We encourage her not to let diabetes become an excuse for not living her life and in the meantime, we’re trying to do everything we can to help find a cure.”
Mrs Boulton’s latest fund-raiser is a children’s book sale taking place in September.
She has already collected more than 3000 but is calling for anybody with old children’s books to donate them to the cause.
Mrs Boulton is willing to travel to pick up the books.
All proceeds from the book sale will be donated to the Juvenile Diabetes Research Foundation.
She can be contacted at firstname.lastname@example.org.