Clarkson woman seeks to Conquer Cystic Fibrosis

Cassandra Domjahn with horse Bailey. Pictures: Matt Jelonek
Cassandra Domjahn with horse Bailey. Pictures: Matt Jelonek

MEDICATION and horse riding have helped improve life for a Clarkson woman with cystic fibrosis, a genetic disease that affects the lungs and digestive system.

Cassandra Domjahn (27) had a lung function of around 25 per cent and was facing a double lung transplant before she became eligible for a life-changing medication called Orkambi in 2016.

To manage the disease, Ms Domjahn takes about 20 tablets and undertakes physiotherapy and nebuliser treatments every day.

She also endures lengthy stays in hospital for IV antibiotics about every four months or when the need arises.

“While life isn’t always easy, I make the most of it,” she said.

“I have the same dreams and ambitions as every other person in their late 20s: I want to go travelling, own my own property, get married and start a family.

“Having children of my own is likely not possible due to my health, which was a hard pill to swallow but have now come to terms with.

“Thankfully there are other options and I am optimistic; I don’t like to dwell too much on the negatives.“I try to stay as active as possible; I have a horse, which is great therapy for me, physically and mentally.

“Even though life with cystic fibrosis is hard, I feel extremely lucky to be where I am. I’ve lost many close friends and a lot of my dreams are to do the things they never got to do.”

With more than half of people with cystic fibrosis expected to die before their 30th birthday, Ms Domjahn advocates for Conquer Cystic Fibrosis, a charity that aims to extend the life of people with the disease.

“I want to live a longer life but I also want to help younger people to have the opportunities that those without CF have,” she said.

As part of her efforts, Ms Domjahn will glam up on Saturday, May 18, for the annual Conquer Cystic Fibrosis Grand Ball at Crown Perth.

“Cassandra is very active and committed to her health but, somehow, she has also found the time to share her experiences for the benefit of others,” Conquer Cystic Fibrosis chairwoman Wendy Endebrock-Brown said.

“She is young and has the world at her feet and we are desperate to keep fighting for her and everyone else in this fight.

“We believe the best way to do that is to keep the funds flowing to the researchers who hold the key to unlocking a much longer future for people with cystic fibrosis.”

Visit www.conquercysticfibrosis.com.

Related news 

Life-saving drug available to Australians with cystic fibrosis

Super Bingo to help raise $100k for Cystic Fibrosis

Rockingham families reeling after cystic fibrosis drugs rejected