Carer flexes fundraising muscle

Disability carer Janine Spencer with Charlie Hughes (3) in his motorised buggy. Picture: Marcus Whisson d425321
Disability carer Janine Spencer with Charlie Hughes (3) in his motorised buggy. Picture: Marcus Whisson d425321

The occupational therapist will ride for her patient Charlie Hughes (3), who has congenital muscular dystrophy.

Ms Spencer will join Charlie’s parents Steve Hughes and Jodie Hatherly as well as 10 others who have formed Team Charlie for the 14-kilometre mountain bike ride.

She said it was important people realise how debilitating muscular dystrophy could be.

‘It’s classified as a rare disease but it’s a common one, it’s not like cancers that have a lot of government support and funding,’ Ms Spencer said.

‘I want people to be aware of it and what it does to those who have it and to find out about Muscular Dystrophy WA.’

Muscular dystrophy is a neuromuscular, genetic disorder, which results in the progressive deterioration of muscle strength and function.

Ms Spencer said she would continue to ride in the event after the recent loss of two friends from the disease.

‘A lot of my good friends have muscular dystrophy so it’s something that’s really close to my heart; I lost a couple of friends last month to it so it’s something I’m really passionate about,’ she said.

Muscular Dystrophy WA executive officer John Gummer said the two recent deaths of muscular dystrophy sufferers highlighted the importance for improved services.

‘We simply cannot provide these necessities without funds raised at events such as Ride For Someone Who Can’t at the Dwellingup 100,’ he said.