Parmelia family’s quest to get Kye Ryan (7) specialist help in US


Parmelia boy Kye Ryan has lost his sight due to a tumour.
Parmelia boy Kye Ryan has lost his sight due to a tumour.

A PARMELIA family hope to go to the US to get specialist care for seven-year-old Kye Ryan.

His grandmother Moira Wilson said it had been a heartbreaking journey since Kye was diagnosed with a tumour in July.

“Kye was having a little trouble seeing, so he was taken to the optometrist,” she said.

“He was referred to an ophthalmologist, where it was discovered he had very swollen optical nerves.

“Kye was immediately referred to Princess Margaret Hospital and sent for an MRI.

“The MRI results showed that Kye has a cystic brain tumour – craniopharyngioma.

“He was then rushed for emergency surgery that night to release the pressure of fluid build-up that was causing his sight to be affected.”

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Since then the Calista Primary School student has undergone four operations and has a shunt inserted to drain fluid from the tumour.

“Kye has recovered well from his surgeries; however, he has lost all vision,” Ms Wilson said.

“Our next step is to attempt radiation therapy to eradicate the tumour. The safest radiation therapy for Kye is Proton radiation therapy which is not available in Australia, but is accessible in the USA.”

The whole family have rallied to help Kye attend hospital and specialist visits and care for his siblings Telisha (6) and Raiden (1).

“Kye is remarkably resilient and in good spirits,” Ms Wilson said. “He is noticeably gaining physical and emotional strength by the day.

“This is encouraging as we are hoping to have Kye in the best possible condition when we eventually undertake radiotherapy.”

To help with expenses, Ms Wilson has set up a Gofundme page. Visit Kye’s Journey